By B.L. Ochman
#Sing2Lines challenge to save Eliza
When Cara and Glenn O’Beill, parents of 4-year-old Eliza O’Neill were told their daughter had a rare metabolic disorder called SanFilippo Syndrome, they knew it was a death sentence – unless they could raise $2.5 million for a clinical trial that may just save her life.
Thanks to the power of family, a video they hope will go viral, and the giant hearts of over 20,000 supporters across the globe, the O’Neill family has made history, raising more than $1 million – the largest amount ever through the fundraising website, GoFundMe.
Social Media Singing Challenge
Now, to help continue to support this life-saving mission, the O’Neills kicked off a social media singing challenge campaign, #Sing2Lines for #SavingEliza. With a ripple effect similar to the ice-bucket challenge, #Sing2Lines has raised over $50,000 in just a few weeks and continues to grow.
But there is hope! Researchers at Nationwide Children’s Hospital have discovered a breakthrough gene therapy treatment that could save Eliza and others with the disease – literally stopping it in its tracks overnight!
The research conducted points to this clinical trial being the answer to stopping this disease, which means the only thing standing between Eliza and her miracle, is money.